My Brother Mehdi's Story: Living with Neurofibromatosis (NF)

In this episode, Samia Arslane shares the story of her younger brother Medhi, who lived with neurofibromatosis (NF), a genetic disorder that causes tumors to grow along the nerves.
Her brother was diagnosed as a baby and faced many challenges throughout his life, including multiple tumors, surgeries, and eventually cancer. But she doesn’t want people to remember him for his illness. Mehdi was so much more than that. He had dreams, ambitions, a wonderful personality, and an incredible determination to live his life despite everything he went through.
She lost Mehdi on January 18, 2018, when he was just 28 years old.
Since then, raising awareness about NF has become very important to her. She serves on the Board of Directors of Children's Tumor Foundation Europe (CTF Europe), where she hopes to make a difference for individuals and families affected by this disease.
She’s also working on a documentary inspired by Mehdi's life. Her goal is not only to tell his story but also to share the experiences of others living with NF. She wants people to see the individuals behind the diagnosis, their personalities, their struggles, their hopes, and their dreams. Her goal of sharing Medhi’s story is to raise awareness and help families feel less alone.
ILearn More & Stay Connected
Follow the documentary's journey: @Mehdidocumentary_ten18
Follow Samia Arslane: @samiagenlux
Children's Tumor Foundation: www.ctf.org
European Board Member: www.ctf.org/europe/board-of-directors (not sure you need this but it’s proof)
Samia's website: www.samiaarslane.com